Ross is improving weekly! Thank you for the prayers lifted on his/our behalf. In the last month, he has gone from being "up and about" for 20 minutes at a time to challenging his afternoon nap for the last week. He is up and about all day. We stopped Glaucoma drops last week to see how his eyes are doing. The pressures have been perfect for the last month and all the inflammation is out of the front of the eye! Yahoo! His left Optic nerve is still swollen and has fluid around it. Thus, we go get a spinal tap tomorrow in Dallas to see if there is pressure in his brain. the Neuro- Ophthalmologist needs to know the pressure in order to move forward in the treatment of Ross' eye. He has ringing in his left ear and pressure around the ear as well.
He has an extended EEG June 1st to measure what's going on his brain. We are praying for no seizure like activity. No spikes. Normal movement and not "slow" like the last one.
We won't get info from this until mid July. He continues to take Keppra and will continue this from 6 months to a year. He can not drive until September.
Ross had his first PT (Physical Therapy) appointment last Thursday. It went very well! He has a ways to go and the therapist is working with him to set goals of getting back to work ASAP. Ross loves to work out, but being basically bed ridden for 8 weeks makes it challenging. HE is doing great and really enjoys PT.
Ross helped me dig out a patch of grass in our backyard for a 10x4 veggie garden. The weather was perfect midweek. He did great and considered it his PT for the day. :) We are going to start doing Yoga together... this is my Mother's Day gift. Research shows that yoga is incredible for brain health and for auto-immune health (me). I think we are perfect candidates to make it a regular practice. :)
The biggest challenges are fatigue and dizziness for Ross. His vision is getting a little better it seems. He has much more clarity and control of his thoughts and responses. He is almost "normal". We start OT next week to measure how he's improving in that area.
Ross is a trooper! He is pushing himself to get stronger yet resting as needed to allow for healing. He has a positive attitude and excitement for life. You might see him out and about more as he re-socializes himself and gets used to the outside world. :)
Thanks for the prayers and encouragement!! Keep them going!! We are nearly "there"!!
Blessings,
Jamie
5 comments:
The picture of you is amazing.... so thankful that this picture can be taken - GOD is so good - and the blessings that you - and those of us who love you have witnessed have been just beyond awesome. Much love...
Jamie sweets, so happy you had a wonderful Mothers Day! You babies sound so precious. The Lord knew how to bless us by giving us such beautiful creates, young souls, to raise!
Yoga will bw so good for both of you, particularly because you will do it togehter. Soon your sweet Myra and Liam will join th action..unless you wait until after bedtime!
The funny words they say, and precious turns of phrase will be YOURS forever. (Anna called flowers 'row-rees' and there we still speak of how well the row-rees are doing in our yard.) Of course 'row' rhymes with flower.
WE are so thankful that Ross is doing well. My heart has ached for you and your stress and pain, and Ross's pain when he was so ill. Now my heart sings for his daily improvement. I suspect that the love of you wee ones has helped him to heal as well.
Love and prayers for all of you! Thank you for sharing your story with us all.
We are so glad that things have improved and that Ross is getting out and will be able to be with us again soon. I am so glad that you are able to experss yourself so well and that you have such a strong relationship with
God. He is so good!
Jamie, I love your blog and I'm so happy you are there to help Ross with his recovery. You know he couldn't make it without his loving wife...and I know you and what you are made of. You've got the strength, determination, and faith to make sure that Ross is going to get well. I pray for you and your family. Hang in there sweetheart. I love you so much!! Janice Womack
We still think of you guys regularly in our thoughts and prayers. Thanks for keeping us informed via the blog. It does sound like progress is happening. Hurrah for that. You guys are sure amazing. much love
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